CMD is a group of muscle diseases that occur at birth or during early infancy and is characterised by diminished muscle tone, according to rarediseases.org.
With progressive muscle weakness, a common symptom of CMD, Danië* has lost the ability to walk and stand on his own, says Marina Otto, Danië* ’s mom.
“It is impossible for Danië*, 6, to sit upright by himself, he is also unable to climb, crawl, walk, run or jump like regular kids and all he wants is to be just like them. But despite his many challenges he still has a playful spirit and is a really smart young man,” says Dickerson.
However, when Dickerson, 42, met Danië* , he was inspired by his positivity and bravery. Learning about his condition and the pressure his family is under to cover his extensive medical costs without medical aid, Dickerson wanted to help the family.